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Neuromotor Research Clinic: Changing Lives

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Category: research Video duration: Neuromotor Research Clinic: Changing Lives

Sophie Stiglitz was born with a genetic disorder that limits brain development in the areas that facilitate movement and communication. Doctors informed her parents, Joe and Emily, that their daughter may never walk or talk. After her second therapy session with the Neuromotor Research Clinic at the Fralin Biomedical Research Institute, Sophie has defied all odds.

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First kid isn't a lot of emotions. And then when she was born, it was part of the best day of my life. But then six months into it, we found out the diagnosis that she had a rare genetic condition, which was started the roller coaster. And it was probably the worst day of my life at that point. They had experienced this therapy and they would just rave about it on the page and how much their child learned and developed. Shortly after that, I ended up emailing a contact at the Freeland Biomedical Research Institute and we were able to get Sophie all signed up shortly after her first birthday. One of the things that we've worked really hard on beyond just thinking about dosage of therapy is the actual therapeutic process. And so we have an entire framework that guides our therapeutic process, that tells therapists how to interact with the child. We've seen a drastic change for the better before she was. She wasn't crawling as we typically would send shoes kinda doing a worm. So she was able to crawl. She was at that point, she was standing up more. She's been able to walk not necessarily consistently, but be able to take steps, DO cross 2020 steps in a row or communication had blossomed. She was intentionally using sine to help tell us what she wanted. Your hands. You got it. I think that's really why I keep dedicated to this research is because that's what it's about for me, is to help children and families maximize their learning potential. You start to wonder, what is our purpose here? What can we do? Joe and I have always wanted to try and help support the therapy programs, help support research, and even help support other families to potentially be able to fund their children to come and experience this therapy program. Gifts like this are important to keep things moving forward and to give these children a chance at a better quality of life, a chance at a potential cure or treatment. Without gifts like bees, nothing would be able to move forward. It wouldn't be possible. The research would stay still and nothing would be in the works at potentially finding a treatment or a cure for these kids.